August 14, 2000 Dear Family, We just returned home from a weekend visit with Skylar, Chris, and Suzanne. Skylar is very sick indeed. He is very, very thin. He alternately lies on the rug or on the couch, usually in a fetal position. He is groggy and has a hard time staying awake or concentrating. In his most active moments he plays some Nintendo 64 games, but tires even at that very quickly. He was hardly up at all today; I napped with him on the rug for a while, laying as close as I could without disturbing him in the hope that my physical presence would give him some comfort. His breathing is quick and sharp and labored. I have been sending these petitions up to the Lord this weekend, in the order of my preference: 1) Lord Jesus, please come back and rescue us all!!! Please comfort Your people with Your personal, physical presence! 2) If not, then Lord, please make Skylar completely well. 3) If not, please, Lord, make it possible for me to help Skylar! 4) If not, Lord, please release Skylar from his pain and suffering! Please welcome him into your presence so he will not hurt or fear any more! Will the Lord reject forever? And will He never be favorable again? Has His lovingkindness ceased forever? Has His promise come to an end forever? Has God forgotten to be gracious, Or has He in anger withdrawn His compassion? Selah. Then I said, ""It is my grief, That the right hand of the Most High has changed.'' I shall remember the deeds of the LORD; Surely I will remember Your wonders of old. - Psalm 77:7-11 One day when Chris called me "Grandpa", Skylar said to Chris - "Don't call him Grandpa, call him Papa! He's Papa, and Papa is different!" Oh, would to God that this Papa were only different enough to help his grandson! Lord, please look on Skylar with compassion and pity! Please may he be precious in Your eyes! On Wednesday morning at 8:30 I will speak with Dr. Macias on the telephone in the hope of his approving my nutrition plan for Skylar. Please ask that the Lord might allow this so that I can provide Skylar with a little comfort and help in his distress. O my God, I cry by day, but Thou dost not answer; And by night, but I have no rest. Yet Thou art holy, O Thou who art enthroned upon the praises of Israel. In Thee our fathers trusted; They trusted, and Thou didst deliver them. To Thee they cried out, and were delivered; In Thee they trusted, and were not disappointed. - Psalm 22:2-5 O Lord, our trust is in You. Thank You that you have promised never to leave or forsake us; please do not leave or forsake our dear child in his suffering. Thank you, our family, for bearing our burden with us. Love, -Dann (for Pam and Chris as well)