April 20, 2000 Dear Family, It is Thursday afternoon at the hospital. Skylar continues to do a little better each day, thanks be to God! This morning when we arrived I dropped Pam off to go up to Skylar's room while I hunted for an almost unattainably scarce parking spot (the parking situation here is so horrible I would have to devote an entire letter to do it justice). God has often been gracious even in such small things as being able to find a place in the parking garage. When I arrived at his room, I washed my hands and then Skylar and I spent some time together. "Can I turn off the TV and visit with you?" (He was watching "Aladdin" the animated movie). "Yes" his head nodded. We took one of our "morning walks", remembering how at Nana and Papa's house each morning we would go out the front door to see the new day that God had made for us. "Who made that big tree, Skylar?" I watch his mouth form the word "God". "That's right, God did." Then we walk down the porch in our imagination to where a big fruit spider sits in the center of his web. "Look at that big spider! He's waiting to catch a bug that flies into his net. Who made him?" (Skylar, silently)"God". "Good, let's walk down the driveway." In our imagination we continue down Nana and Papa's driveway and look at the apricot tree, the plum tree, the tangerine tree. We pick some fruit and put it into Papa's pocket for breakfast. Then we walk across the street and visit Honey, the little dog that God made. Afterwards we go back in the house for breakfast. Papa sings some Psalms for Skylar, Psalm 5 and Psalm 116. Then I sing a couple of his song choices. Skylar's vent settings are a little bit improved today; we are still waiting for some definitive word as to when he might be able to get off of the ventilator. Yesterday's high points were some fun and games with Skylar. During one game we played, each time Skylar would wink his left eye I would raise my right hand; when he winked his right eye, I would raise my left hand. After a few rounds of this, he began blinking both eyes at the same time; OK, no problem, I raised both hands. But then the little mischief began blinking both eyes at an alarming rate, forcing my hands up and down as fast as I could move them! He had me laughing out loud! I got to return the favor with another game. I took down the drawing that Skylar's brother Chris and I had made a week or two ago and said, "Skylar, if you can touch Coco the dog in this drawing, I will make a very silly face for you". With great difficulty, Skylar slowly raised his hand toward Coco in the drawing. After much effort (and a little adjustment on my part) he managed to touch the drawing of Coco. "Great!" I said, and so I set the picture down and ducked below the level of the bed to "put on" my silly face. When I raised my head back into Skylar's line of sight, I had my glasses on upside-down and my tongue stuck out and off to one side. My reward was that Skylar laughed! (silently, of course; but I could tell by his eyes and the shape of his mouth that he was laughing). What a fine reward! I thank and praise our Lord for these precious times of real interaction with my grandson. Yesterday and today we "thumb-wrestled", and I was amazed at the effort and enthusiasm Skylar put into it. Today I tried to arm-wrestle with him, and was again amazed at his effort! Please continue to pray for increased strength and health for this dear child. Thank you for your continued love and support. Your brother in Christ, Dann (for Pam as well)